Balancing constraints and requirements in an application process

Stela McLachlan, Katharine Evans, Rebecca Whitehorn, Emma Turner, Jacqueline Oakley, Andy Boyd, Robin Flaig · 2024

Read Balancing constraints and requirements in an application process by Stela McLachlan, Katharine Evans, Rebecca Whitehorn, Emma Turner, Jacqueline Oakley, Andy Boyd, Robin Flaig (2024) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-13177917.txt.

Description

Seven authors describe how a UK data resource rebuilt its application process in this 2024 paper. The resource links long running population studies to health records inside a secure research environment, and it began as a COVID-19 service before widening to all public good research.

Growth brought new data controllers and new record types, from education and work to tax and benefits, each with its own constraints. The team expanded review into three stages, adding a fourth for requests touching the new administrative data, aligned with the national statistics authority. Requests also faced checks on complexity and ethics. The paper is a case study in balancing study demands, provider rules, and safe, timely access.

Catalog record

CREATORStela McLachlan, Katharine Evans, Rebecca Whitehorn, Emma Turner, Jacqueline Oakley, Andy Boyd, Robin Flaig
YEAR2024
COLLECTIONPAPERS
FORMATTXT
FILE SIZE2 KB
VERSION1.0
LICENSECC BY 4.0
RIGHTSCC BY
SOURCEEurope PMC

Source: https://europepmc.org/articles/PMC13177917

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