Evolution of ad hoc and routine data linkage in Australia

Erika Hagemann, Mikhalina Dombrovskaya, Felicity Flack · 2024

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Description

Erika Hagemann, Mikhalina Dombrovskaya, and Felicity Flack trace how data linkage in Australia grew from one-off projects to routine practice. Linked records let researchers follow health and services across whole populations. A national network set up in two thousand nine built that capacity. Over two hundred data sets are now linked as a matter of routine.

The study counted linkage requests handled across the network over five years. It sorted which data sets get linked for single projects and which fields ask most. Sets once treated as one-offs, like registries and long-term cohorts, have become routine over time. The authors weigh how project linkage fits beside growing master files. Their counts aim to guide where Australia should expand its linkage power next.

Catalog record

CREATORErika Hagemann, Mikhalina Dombrovskaya, Felicity Flack
YEAR2024
COLLECTIONPAPERS
FORMATTXT
FILE SIZE2 KB
VERSION1.0
LICENSECC BY 4.0
RIGHTSCC BY
SOURCEEurope PMC

Source: https://europepmc.org/articles/PMC13177875

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