Reporting on the establishment of a Privacy Preserving Record Linkage to Facilitate an Ongoing Crosswalk Between Research and Health Administrative Databases
Brendan Behan, Alana Sparks, Heena Cheema, Sibel Naska, Francis Jeanson, Shalane Basque, Charlotte Ma, Jason Chai-Onn, Mojib Javadi, Minnie Ho, Tom Mikkelsen · 2024
Read Reporting on the establishment of a Privacy Preserving Record Linkage to Facilitate an Ongoing Crosswalk Between Research and Health Administrative Databases by Brendan Behan, Alana Sparks, Heena Cheema, Sibel Naska, Francis Jeanson, Shalane Basque, Charlotte Ma, Jason Chai-Onn, Mojib Javadi, Minnie Ho, Tom Mikkelsen (2024) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-13177761.txt.
Description
Brendan Behan and co-authors report on a privacy-safe way to link brain research data with health records in Ontario, in work from 2024. Linking the two sources can reveal how research findings play out in real care. Raw identity sharing would break privacy law and public trust, though.
A provincial brain institute runs a platform that stores data across many brain disorders. Its linkage method matches records with a partner institute without exposing identities. The method has moved from design into daily use since it was first presented. The report covers the setup, the safeguards, and lessons from running it. Other data platforms can adapt the approach for their own linkage needs.
Catalog record
| CREATOR | Brendan Behan, Alana Sparks, Heena Cheema, Sibel Naska, Francis Jeanson, Shalane Basque, Charlotte Ma, Jason Chai-Onn, Mojib Javadi, Minnie Ho, Tom Mikkelsen |
|---|---|
| YEAR | 2024 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 2 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |