menting Data Governance with Multi-Modal Privacy-Preserving Record Linkages between Restricted and Public Open Enclaves
Kenneth Gersing, Sam Michael, Fred Prior, Joel Saltz, Richard Moffitt, Sara Rogovin, Jasmin Phua, Shaun Grannis, Ben Amor, Andrew Girvin, Ahmad Baghal · 2024
Read menting Data Governance with Multi-Modal Privacy-Preserving Record Linkages between Restricted and Public Open Enclaves by Kenneth Gersing, Sam Michael, Fred Prior, Joel Saltz, Richard Moffitt, Sara Rogovin, Jasmin Phua, Shaun Grannis, Ben Amor, Andrew Girvin, Ahmad Baghal (2024) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-13177688.txt.
Description
Kenneth Gersing and ten colleagues present a 2024 paper on linking health data across a locked vault and an open library without exposing anyone's identity. Centralizing records is becoming untenable as privacy rules tighten, so the team built a sharing system around privacy-preserving record linkage. The method matches the same person in two datasets using coded fingerprints instead of names.
An honest broker runs the linkage between a restricted clinical cohort enclave and a public cancer imaging archive. The authors walk through the governance models each direction of sharing demands, the special care imaging data needs, and how to aggregate combined data safely. The design lets researchers join clinical records to public images while the underlying identities stay sealed.
Catalog record
| CREATOR | Kenneth Gersing, Sam Michael, Fred Prior, Joel Saltz, Richard Moffitt, Sara Rogovin, Jasmin Phua, Shaun Grannis, Ben Amor, Andrew Girvin, Ahmad Baghal |
|---|---|
| YEAR | 2024 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 2 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |