Adaptive Governance: Empowering Data Sharing for Public Health Impact - Insights from North Carolina Department of Health and Human Services
Amy Hawn Nelson, Paul Hogle, Sharon Zanti, Scott Proescholdbell, Jessie Tenenbaum · 2024
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Description
Amy Hawn Nelson and co-authors report on data sharing for public health in North Carolina. Their 2024 talk gives an update on work by the state health and human services agency. With university partners, the agency built legal and ethical steps for routine sharing. The aim was timely use of data across sectors.
Methods drew on joint action research and structured dialogue with a wide range of partners. Four actions came out of the work. The agency set a data strategy and wrote a sharing guidebook. It staffed its data office and put a new legal frame in place. Three use cases show the impact. The authors note that routine sharing in a large agency faces legal, technical, and cultural blocks.
Catalog record
| CREATOR | Amy Hawn Nelson, Paul Hogle, Sharon Zanti, Scott Proescholdbell, Jessie Tenenbaum |
|---|---|
| YEAR | 2024 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 2 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |