The CanPath-HDRN Canada Collaboration: Enabling Multi-jurisdictional Research in Canada
Jennifer Brooks, Anne Hayes, Riaz Alvi, Mahmoud Azimaee, Parveen Bhatti, Sheraz Cheema, Tim Choi, Nouar ElKhair, Megan Fleming, Noah Frank, Katelyn Frizzell, Jodi Gatley, Lindsey Gilbert, Simon Gravel, Shandra Harman, Jason Hicks, Vikki Ho, Jordan Hunt, Stefana Jovanovska, Victoria Kirsh, Robyn Kydd · 2024
Read The CanPath-HDRN Canada Collaboration: Enabling Multi-jurisdictional Research in Canada by Jennifer Brooks, Anne Hayes, Riaz Alvi, Mahmoud Azimaee, Parveen Bhatti, Sheraz Cheema, Tim Choi, Nouar ElKhair, Megan Fleming, Noah Frank, Katelyn Frizzell, Jodi Gatley, Lindsey Gilbert, Simon Gravel, Shandra Harman, Jason Hicks, Vikki Ho, Jordan Hunt, Stefana Jovanovska, Victoria Kirsh, Robyn Kydd (2024) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-13177472.txt.
Description
Jennifer Brooks and co-authors describe a partnership that links survey data with health records across Canada, in a 2024 paper. CanPath follows more than 350,000 Canadians in seven regional cohorts across all ten provinces, one of the largest such studies in the world. HDRN Canada ties together data centers at provincial, territorial, and national levels. The pair joined forces so researchers can run studies that span regions.
The link joins CanPath's harmonized survey data on health and lifestyle to administrative health records held at the network's centers. A single access hub fields requests for multi-region projects, sparing researchers a province-by-province slog. The paper lays out how the system works and what early users were able to do with it.
Catalog record
| CREATOR | Jennifer Brooks, Anne Hayes, Riaz Alvi, Mahmoud Azimaee, Parveen Bhatti, Sheraz Cheema, Tim Choi, Nouar ElKhair, Megan Fleming, Noah Frank, Katelyn Frizzell, Jodi Gatley, Lindsey Gilbert, Simon Gravel, Shandra Harman, Jason Hicks, Vikki Ho, Jordan Hunt, Stefana Jovanovska, Victoria Kirsh, Robyn Kydd |
|---|---|
| YEAR | 2024 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 3 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |