261 From registry to research: Building trust and partnerships to advance precision health in communities at risk for Alzheimer’s disease
Dorothy McDowell, Joyce Balls-Berry, Jenny McKenzie · 2026
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Description
Dorothy McDowell, Joyce Balls-Berry, and Jenny McKenzie describe in 2026 a program that links a research registry to community trust building. The goal is to draw more older adults at risk for Alzheimer disease into precision health studies. Groups that have often held back from research are the focus.
A four-way partnership joined a university research institute, lab partners, and community groups. Together they ran education sessions on Alzheimer disease, a dinner forum on sleep health, and direct referrals into open studies. Trusted local voices led the talks and handed people straight to study staff. In 2025 the events reached over 170 people, most of them Black or African American and over 65. About a fourth filled in inquiry cards. The team plans wider tracking and growth in 2026.
Catalog record
| CREATOR | Dorothy McDowell, Joyce Balls-Berry, Jenny McKenzie |
|---|---|
| YEAR | 2026 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 2 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |