Increasing number of unmanaged distressing symptoms in people living with dementia associated with family carer burden and distress following an unplanned hospital admission: A longitudinal cohort study
Sophie Crawley, Victoria Vickerstaff, Clare Ellis-Smith, Charlotte Kenten, Emel Yorganci, Catherine J Evans, Elizabeth L Sampson, Nuriye Kupeli · 2026
Read Increasing number of unmanaged distressing symptoms in people living with dementia associated with family carer burden and distress following an unplanned hospital admission: A longitudinal cohort study by Sophie Crawley, Victoria Vickerstaff, Clare Ellis-Smith, Charlotte Kenten, Emel Yorganci, Catherine J Evans, Elizabeth L Sampson, Nuriye Kupeli (2026) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-13167373.txt.
Description
Sophie Crawley and co-authors follow family carers of people with dementia after an unplanned hospital stay, in work from 2026. People with dementia often carry many distressing symptoms, and sudden admissions pile stress on carers. The team asks whether more unmanaged symptoms in the patient track worse carer health over time.
Fifty-one carers, with a mean age near sixty, were tracked for twelve months. Symptoms in body, mind, and spirit were scored, along with carer burden, distress, and grief before death. Burden rose as unmanaged symptoms grew. The team used layered models to weigh the link over time. The findings argue for symptom control as carer support, not just patient care.
Catalog record
| CREATOR | Sophie Crawley, Victoria Vickerstaff, Clare Ellis-Smith, Charlotte Kenten, Emel Yorganci, Catherine J Evans, Elizabeth L Sampson, Nuriye Kupeli |
|---|---|
| YEAR | 2026 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 25 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |