Impact of an online lupus self-management programme in an established, population-based cohort of adults with diagnosed SLE: a mixed-methods study
Sarah D Gilman, Sara Johnson, Gaobin Bao, Charmayne Marie Dunlop-Thomas, Katherine Carpenter, Melissa French, Cristina Drenkard, Melicent Miller, Mary Crimmings, S Sam Lim · 2026
Read Impact of an online lupus self-management programme in an established, population-based cohort of adults with diagnosed SLE: a mixed-methods study by Sarah D Gilman, Sara Johnson, Gaobin Bao, Charmayne Marie Dunlop-Thomas, Katherine Carpenter, Melissa French, Cristina Drenkard, Melicent Miller, Mary Crimmings, S Sam Lim (2026) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-13157730.txt.
Description
Sarah Gilman and co-authors test an online self management program for adults with lupus in a Georgia cohort, in work dated 2026. The program, called SELF, teaches people with this long term autoimmune disease to live with it with less fear. Online delivery could reach patients who live far from specialist centers.
Two hundred twenty-one adults from an established population cohort enrolled. They filled in patient reported measures at the start and after ninety days. A small group also gave interviews. The team used a known framework that tracks reach, effect, uptake, delivery, and upkeep. The mixed methods design joins numbers with patient accounts to judge real world value.
Catalog record
| CREATOR | Sarah D Gilman, Sara Johnson, Gaobin Bao, Charmayne Marie Dunlop-Thomas, Katherine Carpenter, Melissa French, Cristina Drenkard, Melicent Miller, Mary Crimmings, S Sam Lim |
|---|---|
| YEAR | 2026 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 44 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |