Clinician Communication About Uncertainty During Parkinson Disease Diagnostic Consultations

Marij A. Hillen, Elisabeth Kurpershoek, Mark H.B. Huisman, C. Machiel Pleizier, Annemarie Vlaar, Jeroen Blankevoort, Evelien Zoons, Dareia S. Roos, Marianne de Visser, Rob M.A. de Bie, Joke M. Dijk · 2026

Read Clinician Communication About Uncertainty During Parkinson Disease Diagnostic Consultations by Marij A. Hillen, Elisabeth Kurpershoek, Mark H.B. Huisman, C. Machiel Pleizier, Annemarie Vlaar, Jeroen Blankevoort, Evelien Zoons, Dareia S. Roos, Marianne de Visser, Rob M.A. de Bie, Joke M. Dijk (2026) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-13156960.txt.

Description

Telling a patient that the diagnosis is not certain, and that the future path is unclear, is a delicate part of a Parkinson's consultation, and doctors get little training for it. Marij Hillen and co-authors record such consultations in a 2026 study of fifty patients, across first visits and early follow-ups. Every spoken mark of uncertainty was coded for topic, wording, and who raised it.

Doctors voiced uncertainty about twenty times per patient across the two visits, with a wide range between doctors. Patients answered surveys on their own feelings of uncertainty and their trust in the doctor. The team also weighed how well each side tolerates not knowing. Their models test whether more talk of uncertainty leaves patients more unsettled or more trusting, and for whom. The study gives training programs a rare close record to build on.

Catalog record

CREATORMarij A. Hillen, Elisabeth Kurpershoek, Mark H.B. Huisman, C. Machiel Pleizier, Annemarie Vlaar, Jeroen Blankevoort, Evelien Zoons, Dareia S. Roos, Marianne de Visser, Rob M.A. de Bie, Joke M. Dijk
YEAR2026
COLLECTIONPAPERS
FORMATTXT
FILE SIZE51 KB
VERSION1.0
LICENSECC BY 4.0
RIGHTSCC BY
SOURCEEurope PMC

Source: https://europepmc.org/articles/PMC13156960

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