Experiences of stigma and violence among persons affected by skin neglected tropical diseases (NTDs): longitudinal analysis from an integrated intervention in Liberia

India Hotopf, Shahreen Chowdhury, Hannah Berrian, Wede Seekey, Jerry Kollie, Colleen Parker, Zeela Zaizay, Emerson Rogers, Georgina V K Zawolo, John Solunta Smith Jr, Karsor Kollie, Tiawanlyn Godwin-Akpan, Emmanuel Zaizay, Sally Theobald, Laura Dean, Rosalind McCollum · 2026

Read Experiences of stigma and violence among persons affected by skin neglected tropical diseases (NTDs): longitudinal analysis from an integrated intervention in Liberia by India Hotopf, Shahreen Chowdhury, Hannah Berrian, Wede Seekey, Jerry Kollie, Colleen Parker, Zeela Zaizay, Emerson Rogers, Georgina V K Zawolo, John Solunta Smith Jr, Karsor Kollie, Tiawanlyn Godwin-Akpan, Emmanuel Zaizay, Sally Theobald, Laura Dean, Rosalind McCollum (2026) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-13154561.txt.

Description

India Hotopf and co-authors studied stigma and violence among people with skin neglected tropical diseases in Liberia in a 2026 paper. Such experiences drive exclusion, poor mental health, and poverty, and they block care seeking. Past evidence centred on leprosy and on the personal level alone.

Working with affected people as co-researchers, the team drew on data from over six hundred participants at three points between 2019 and 2023. Stigma and violence seemed to fall, but emotional violence and self-stigma stayed common. Myths from some informal healers persisted, and women were hit hardest. Leprosy brought the harshest accounts. Gender-aware work with informal providers is needed, they say.

Catalog record

CREATORIndia Hotopf, Shahreen Chowdhury, Hannah Berrian, Wede Seekey, Jerry Kollie, Colleen Parker, Zeela Zaizay, Emerson Rogers, Georgina V K Zawolo, John Solunta Smith Jr, Karsor Kollie, Tiawanlyn Godwin-Akpan, Emmanuel Zaizay, Sally Theobald, Laura Dean, Rosalind McCollum
YEAR2026
COLLECTIONPAPERS
FORMATTXT
FILE SIZE89 KB
VERSION1.0
LICENSECC BY 4.0
RIGHTSCC BY
SOURCEEurope PMC

Source: https://europepmc.org/articles/PMC13154561

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