ABSTRACT NUMBER: ESOC2026A647 FROM TOKENISM TO PARTNERSHIP: OVERCOMING RECRUITMENT AND GOVERNANCE BARRIERS TO INVOLVING PEOPLE WITH STROKE AS RESEARCH PARTNERS
Marina Charalambous · 2026
Read ABSTRACT NUMBER: ESOC2026A647 FROM TOKENISM TO PARTNERSHIP: OVERCOMING RECRUITMENT AND GOVERNANCE BARRIERS TO INVOLVING PEOPLE WITH STROKE AS RESEARCH PARTNERS by Marina Charalambous (2026) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-13145435.txt.
Description
Marina Charalambous gives guidance in 2026 for bringing people with stroke in as true research partners, not tokens. Stroke survivors often get limited or consultative roles. Recruitment trouble, speech barriers, and rigid governance rules keep them at the edge.
Talks with stroke survivors who had done research before, some with trouble speaking, fed a thematic analysis. The study sorts what helped them and what blocked them. It then sets out six recommendations: build rapport, learn communication needs, foster a support system, offer accessible training, tailor resources, and back communication groups. The guidance also covers ethics approval, consent, pay, and lasting involvement. It aims to transfer across complex intervention studies.
Catalog record
| CREATOR | Marina Charalambous |
|---|---|
| YEAR | 2026 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 2 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |