Types of Challenges and Barriers in Accessing Paediatric Palliative Care in Romania: A Qualitative Study Based on Focus Groups Guided by a Semi-Structured Discussion Guide
Mihaela Hizanu Dumitrache, Liviu Stafie, Alina Plesea-Condratovici, Dana Elena Mindru, Camer Salim, Eva Maria Elkan, Mădălina Duceac Covrig, Mădălina Nicoleta Matei, Ciprian Adrian Dinu, Letiția Doina Duceac · 2025
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Description
Mihaela Hizanu Dumitrache and nine colleagues catalog the barriers Romanian families hit when seeking palliative care for dying children, in a 2025 qualitative study. Such care is underdeveloped and patchy in Romania, with no national strategy and too few specialists. Three focus groups gathered parents, officials, and charity workers in one county.
Parents spoke of feeling abandoned by the curative system and prized pain control, safety, and community backing. Officials admitted weak skills and poor coordination across sectors. Charities flagged structural barriers and the invisibility of these children in policy. Needs spanned specialist care, psychological support, respite for carers, money help, schooling, and spiritual counsel. Missing statistics hampered planning at every level. The authors urge a national framework built on what families actually said. Their typology of barriers is meant as a checklist for reformers.
Catalog record
| CREATOR | Mihaela Hizanu Dumitrache, Liviu Stafie, Alina Plesea-Condratovici, Dana Elena Mindru, Camer Salim, Eva Maria Elkan, Mădălina Duceac Covrig, Mădălina Nicoleta Matei, Ciprian Adrian Dinu, Letiția Doina Duceac |
|---|---|
| YEAR | 2025 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 33 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |