Patient awareness, involvement, and learning needs in health technology assessment – a survey of patients, caregivers, and patient advocates
Sihui Zhou, Mabel Wan Chi Sim, Zann Sue Ting Foo, Dani Mothci, Sita Ratna Devi Duddi, Kok Hian Tan · 2025
Read Patient awareness, involvement, and learning needs in health technology assessment – a survey of patients, caregivers, and patient advocates by Sihui Zhou, Mabel Wan Chi Sim, Zann Sue Ting Foo, Dani Mothci, Sita Ratna Devi Duddi, Kok Hian Tan (2025) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-12826856.txt.
Description
Sihui Zhou and co-authors survey in a 2025 paper how much patients know about health technology assessment and what they want to learn. Patient voice in such assessments is new worldwide and newest in Asia. The survey reached patients, caregivers, and advocates across 33 countries.
One hundred seventy people replied, 127 from Asia and 43 from elsewhere. Over half, 52.3%, had never heard of the assessment process at all. Only 14.1% had taken part, and 9.3% of those asked had any training. Asian replies showed lower awareness and lower discussion entry than the rest. Among the untrained, 68.5% asked for learning, a strong global signal.
Catalog record
| CREATOR | Sihui Zhou, Mabel Wan Chi Sim, Zann Sue Ting Foo, Dani Mothci, Sita Ratna Devi Duddi, Kok Hian Tan |
|---|---|
| YEAR | 2025 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 26 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |