PP24 Incorporation Scenarios For Rare Diseases In Brazil Considering Clinical And Economic Parameters

Letícia Nascimento Guimarães, Ana Luiza Meira Guerra, Carolina Belinassi, Caio Huerta, Gisele Lemes Veiga Araujo, Matheus Costa e Silva, Carolina Guilhon, Leandro dos Santos · 2025

Read PP24 Incorporation Scenarios For Rare Diseases In Brazil Considering Clinical And Economic Parameters by Letícia Nascimento Guimarães, Ana Luiza Meira Guerra, Carolina Belinassi, Caio Huerta, Gisele Lemes Veiga Araujo, Matheus Costa e Silva, Carolina Guilhon, Leandro dos Santos (2025) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-12768790.txt.

Description

Eight authors review rare disease drug calls in Brazil in a 2025 conference report. Rare diseases strike up to 65 per 100,000 people and strain standard value tests. Records from 2020 to 2024 gave 465 review asks, with 53 rare disease grants among the approvals. The files came from the health ministry web site, open to all.

Only 22 files met the study bars for full cost and proof checks. Cost per health year spanned a huge range, and 68 percent sat above the state cap line. Proof grade was low in 70 percent of files. Grants still went ahead, which the authors tie to the hard nature of rare care.

Catalog record

CREATORLetícia Nascimento Guimarães, Ana Luiza Meira Guerra, Carolina Belinassi, Caio Huerta, Gisele Lemes Veiga Araujo, Matheus Costa e Silva, Carolina Guilhon, Leandro dos Santos
YEAR2025
COLLECTIONPAPERS
FORMATTXT
FILE SIZE2 KB
VERSION1.0
LICENSECC BY 4.0
RIGHTSCC BY
SOURCEEurope PMC

Source: https://europepmc.org/articles/PMC12768790

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