Evaluating the impact of a national brain health education course for older adults with intellectual and developmental disabilities and caregivers: Brain Health-IDD Program protocol

Yona Lunsky, Nicole Bobbette, Mary Chiu, Anupam Thakur, Prachi Patel, Tiziana Volpe, Robert Balogh, Amy Baskin, Marie-Joelle Beaudoin, Maddy Dever, Anna Durbin, Adeen Fogle, Colleen Kelly, Johanna Lake, Gill Lefkowitz, Heidi Mallett, Janet McCabe, Judy Noonan, Avra Selick, Shahin Shooshtari, Sanjeev · 2025

Read Evaluating the impact of a national brain health education course for older adults with intellectual and developmental disabilities and caregivers: Brain Health-IDD Program protocol by Yona Lunsky, Nicole Bobbette, Mary Chiu, Anupam Thakur, Prachi Patel, Tiziana Volpe, Robert Balogh, Amy Baskin, Marie-Joelle Beaudoin, Maddy Dever, Anna Durbin, Adeen Fogle, Colleen Kelly, Johanna Lake, Gill Lefkowitz, Heidi Mallett, Janet McCabe, Judy Noonan, Avra Selick, Shahin Shooshtari, Sanjeev (2025) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-12766847.txt.

Description

Yona Lunsky and a large Canadian team set out the plan for testing a national brain health course for people with intellectual disabilities, in this protocol from twenty twenty-five. The course was built with this group, not just for it. Adults with intellectual and developmental disabilities face higher dementia risk than others, yet brain health programs usually leave them out.

The course, Brain Health-IDD, is a virtual class co-designed and co-taught by clinicians and people with lived experience. Three groups from across Canada will take it: adults with disabilities aged forty and up, family caregivers, and health and social care providers. Surveys and focus groups at the start, at course end, and three months later will track attendance, satisfaction, knowledge, and confidence. Health habits, wellbeing, and whether memory screening gets started are also on the list. Findings will be shared with advocacy and policy groups.

Catalog record

CREATORYona Lunsky, Nicole Bobbette, Mary Chiu, Anupam Thakur, Prachi Patel, Tiziana Volpe, Robert Balogh, Amy Baskin, Marie-Joelle Beaudoin, Maddy Dever, Anna Durbin, Adeen Fogle, Colleen Kelly, Johanna Lake, Gill Lefkowitz, Heidi Mallett, Janet McCabe, Judy Noonan, Avra Selick, Shahin Shooshtari, Sanjeev
YEAR2025
COLLECTIONPAPERS
FORMATTXT
FILE SIZE41 KB
VERSION1.0
LICENSECC BY 4.0
RIGHTSCC BY
SOURCEEurope PMC

Source: https://europepmc.org/articles/PMC12766847

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