The assessment of continuity of care and care coordination for Children and Youth with Special Health Care Needs (CYSHCN): a cross-sectional descriptive study in Northeastern Italy
Elisa Zanello, Adele Maggiore, Raffaella Dobrina, Chiara Barbiero, Enrica Causin, Elisa Cragnolin, Laura Novello, Sabrina Plet, Luca Ronfani, Paola Toscani, Marianela Urriza, Francesca Valencak, Manuela Giangreco · 2025
Read The assessment of continuity of care and care coordination for Children and Youth with Special Health Care Needs (CYSHCN): a cross-sectional descriptive study in Northeastern Italy by Elisa Zanello, Adele Maggiore, Raffaella Dobrina, Chiara Barbiero, Enrica Causin, Elisa Cragnolin, Laura Novello, Sabrina Plet, Luca Ronfani, Paola Toscani, Marianela Urriza, Francesca Valencak, Manuela Giangreco (2025) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-12751405.txt.
Description
Elisa Zanello, Adele Maggiore, Raffaella Dobrina, and a wider team wrote this research paper, published in 2025. It measures how continuous and coordinated care really is for children with special health needs in northeastern Italy, from both the system's records and parents' own ratings.
These children see many professionals across many settings, so their care frays easily. Over twenty-one months the team enrolled families at a university hospital and logged a year of care from family pediatricians, general practitioners, and community services. Nine to twelve months later, parents scored continuity on a twenty-item questionnaire. In 2020 the study also asked how the pandemic had bent their care. Most of the fifty-one children had cancer-related conditions. The authors use the findings to show where handoffs hold and where families are left stitching the system together themselves.
Catalog record
| CREATOR | Elisa Zanello, Adele Maggiore, Raffaella Dobrina, Chiara Barbiero, Enrica Causin, Elisa Cragnolin, Laura Novello, Sabrina Plet, Luca Ronfani, Paola Toscani, Marianela Urriza, Francesca Valencak, Manuela Giangreco |
|---|---|
| YEAR | 2025 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 45 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |