Navigating care together: developing a collaborative checklist to improve care for children with intellectual disabilities
Hayley Linda Trower, Chris Oliver, Leah E. Bull, Joanna J. Garstang, Kylie M. Gray, Heather Hanna, Kate Harvey, Ashley Liew, Sara Muller, Sheridan McDonald, Catherine Krupinski, Hayley Crawford · 2025
Read Navigating care together: developing a collaborative checklist to improve care for children with intellectual disabilities by Hayley Linda Trower, Chris Oliver, Leah E. Bull, Joanna J. Garstang, Kylie M. Gray, Heather Hanna, Kate Harvey, Ashley Liew, Sara Muller, Sheridan McDonald, Catherine Krupinski, Hayley Crawford (2025) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-12729090.txt.
Description
Hayley Trower and a team of co-authors describe building a checklist in two thousand twenty-five for children with intellectual disabilities. The tool helps parents, carers, and clinicians spot and track causes of behaviors that challenge. Families were partners in the work, not just subjects of it.
A development group of parents, clinicians, and researchers met monthly for eight months to revise a first draft. Two more focus groups added feedback on clarity and use. Family input reshaped items to match real life and simplified the guidance notes. Users saw the checklist as an aide for spotting patterns and structuring clinic talks. It was readied for a pilot study of feasibility and acceptability.
Catalog record
| CREATOR | Hayley Linda Trower, Chris Oliver, Leah E. Bull, Joanna J. Garstang, Kylie M. Gray, Heather Hanna, Kate Harvey, Ashley Liew, Sara Muller, Sheridan McDonald, Catherine Krupinski, Hayley Crawford |
|---|---|
| YEAR | 2025 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 37 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |