Health-related quality of life in hereditary angioedema patients treated with subcutaneous C1 inhibitor (C1-INH) therapy in Canada
Susan Waserman, Gina Lacuesta, Amin S. Kanani, Gord L. Sussman, Harold Kim, Hugo Chapdelaine, Hadi A. Goubran Messiha, Chrystyna Kalicinsky, Adil Adatia, Belinda Yap, Marie-France Dansereau, Nataly Tanios, Rami El-Sayegh, Adriana Martin, Hachem Mahfouz, Maye Machnouk, Paul K. Keith · 2025
Read Health-related quality of life in hereditary angioedema patients treated with subcutaneous C1 inhibitor (C1-INH) therapy in Canada by Susan Waserman, Gina Lacuesta, Amin S. Kanani, Gord L. Sussman, Harold Kim, Hugo Chapdelaine, Hadi A. Goubran Messiha, Chrystyna Kalicinsky, Adil Adatia, Belinda Yap, Marie-France Dansereau, Nataly Tanios, Rami El-Sayegh, Adriana Martin, Hachem Mahfouz, Maye Machnouk, Paul K. Keith (2025) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-12717758.txt.
Description
Susan Waserman and colleagues study how subcutaneous C1 inhibitor therapy changed quality of life for Canadians with hereditary angioedema. The disease brings swelling attacks that can not be predicted and can risk life.
The study joined phone talks over one summer with a checked angioedema quality-of-life questionnaire. Twenty patients took part, half of them women, with a mean age in the early fifties, most with type one or two disease. A concept map from the talks showed what patients valued most, across physical, mental, and emotional parts, function, social life, and medical care. Patients told of better control since the therapy began. Most had fewer attacks, and many had none, or next to none. Gains for feelings stood out, with less stress and anxiety about attacks to come.
Catalog record
| CREATOR | Susan Waserman, Gina Lacuesta, Amin S. Kanani, Gord L. Sussman, Harold Kim, Hugo Chapdelaine, Hadi A. Goubran Messiha, Chrystyna Kalicinsky, Adil Adatia, Belinda Yap, Marie-France Dansereau, Nataly Tanios, Rami El-Sayegh, Adriana Martin, Hachem Mahfouz, Maye Machnouk, Paul K. Keith |
|---|---|
| YEAR | 2025 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 33 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |