Adapting to living with systemic autoimmune rheumatic diseases; a qualitative exploration of patient and clinician perspectives
Alice Tunks, Martha Piper, Sean Humfrey, Ellie Dalby, Lucy Calderwood, Kaira Naidu, Sydnae Taylor, Rosia Xiaoke Li, Shihab Ahmed, Wendy Diment, Michael Bosley, Miranda Van Emmenis, Felix Naughton, Sam Norton, Mandy Cousins, David D’Cruz, Melanie Sloan · 2025
Read Adapting to living with systemic autoimmune rheumatic diseases; a qualitative exploration of patient and clinician perspectives by Alice Tunks, Martha Piper, Sean Humfrey, Ellie Dalby, Lucy Calderwood, Kaira Naidu, Sydnae Taylor, Rosia Xiaoke Li, Shihab Ahmed, Wendy Diment, Michael Bosley, Miranda Van Emmenis, Felix Naughton, Sam Norton, Mandy Cousins, David D’Cruz, Melanie Sloan (2025) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-12705830.txt.
Description
Alice Tunks and co-authors explore how people adapt to living with systemic autoimmune rheumatic diseases, illnesses where the immune system attacks the body across many fronts. Their 2025 study interviews thirty-one patients and twenty-eight clinicians in depth. Patients were asked how they had adjusted and whether they had come to accept their condition.
Adapting emerged as a shifting, non-linear journey, often with grief for the life and self before illness. Adaptations were found by trial, and many carried social or money costs. Both groups valued whole-person and psychological support, yet services rarely provide it. Clinicians cited lack of time and training, not lack of empathy. The authors urge weaving psychological support into rheumatology care.
Catalog record
| CREATOR | Alice Tunks, Martha Piper, Sean Humfrey, Ellie Dalby, Lucy Calderwood, Kaira Naidu, Sydnae Taylor, Rosia Xiaoke Li, Shihab Ahmed, Wendy Diment, Michael Bosley, Miranda Van Emmenis, Felix Naughton, Sam Norton, Mandy Cousins, David D’Cruz, Melanie Sloan |
|---|---|
| YEAR | 2025 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 55 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |