Patient-reported outcome measures for use in patients with alpha-1-antitrypsin deficiency: results of a systematic selection process
Karolina Müller, Louisa Vogl, Helge Knüttel, Timm Greulich, Frank Lammert, Pavel Strnad, Claus, Franz Vogelmeier, Marion Wilkens, Robert Bals, Michael Koller · 2025
Read Patient-reported outcome measures for use in patients with alpha-1-antitrypsin deficiency: results of a systematic selection process by Karolina Müller, Louisa Vogl, Helge Knüttel, Timm Greulich, Frank Lammert, Pavel Strnad, Claus, Franz Vogelmeier, Marion Wilkens, Robert Bals, Michael Koller (2025) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-12666101.txt.
Description
ObjectiveAlpha-1-antitrypsin deficiency (AATD) is a hereditary condition associated with the risk of developing chronic lung and liver disease. We aimed for a patient-reported outcome measure (PROM) that addresses generic, lung-specific and liver-specific aspects of quality of life (QoL) in individuals with AATD. Rather than developing a new PROM, we evaluated existing PROMs.
Catalog record
| CREATOR | Karolina Müller, Louisa Vogl, Helge Knüttel, Timm Greulich, Frank Lammert, Pavel Strnad, Claus, Franz Vogelmeier, Marion Wilkens, Robert Bals, Michael Koller |
|---|---|
| YEAR | 2025 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 40 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |