Informing equitable noncommunicable disease prevention policies through lived experience: a scoping review of research approaches
Christina Zorbas, Jacqueline Monaghan, Jennifer Browne, Phoebe Nagorcka-Smith, Andrew D. Brown, Dheepa Jeyapalan, Steven Allender, Anna Peeters, Rebecca Christidis, Kathryn Backholer · 2025
Read Informing equitable noncommunicable disease prevention policies through lived experience: a scoping review of research approaches by Christina Zorbas, Jacqueline Monaghan, Jennifer Browne, Phoebe Nagorcka-Smith, Andrew D. Brown, Dheepa Jeyapalan, Steven Allender, Anna Peeters, Rebecca Christidis, Kathryn Backholer (2025) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-12661748.txt.
Description
Christina Zorbas and co-authors review in 2025 how research has brought the lived experience of marginalized people into disease prevention policy, and how it might do better. Chronic diseases are not shared fairly, and the people most harmed by marginalization, by gender, ethnicity, sexuality, disability, or class, are the people policy rooms least often hear. Their scoping review searched four databases for studies that engaged those voices to shape equitable prevention.
Dozens of articles qualified, clustered on nutrition, with smaller groups on physical activity, tobacco, obesity, mental health, and alcohol. Working from a constructivist and critical stance, the team sorted what helped or blocked genuine inclusion across the studies. The review's purpose is practical: name the approaches that move lived experience from consultation decoration into actual policy design. Prevention that ignores the people carrying the risk, the authors imply, reproduces the inequity it claims to fight.
Catalog record
| CREATOR | Christina Zorbas, Jacqueline Monaghan, Jennifer Browne, Phoebe Nagorcka-Smith, Andrew D. Brown, Dheepa Jeyapalan, Steven Allender, Anna Peeters, Rebecca Christidis, Kathryn Backholer |
|---|---|
| YEAR | 2025 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 48 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |