Hydrocephalus, healing, and disrupted daily living: exploring maternal experiences at Queen Elizabeth Central Hospital in Blantyre, Malawi
Camilla G Aukrust, Patrick D Kamalo, Ebbelet Tembenu, Chimwemwe Mula, Heidi E Fjeld, Blessings A Chapweteka, Ruth Bvalani, Lucinda Manda-Taylor · 2025
Read Hydrocephalus, healing, and disrupted daily living: exploring maternal experiences at Queen Elizabeth Central Hospital in Blantyre, Malawi by Camilla G Aukrust, Patrick D Kamalo, Ebbelet Tembenu, Chimwemwe Mula, Heidi E Fjeld, Blessings A Chapweteka, Ruth Bvalani, Lucinda Manda-Taylor (2025) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-11770357.txt.
Description
Camilla Aukrust and co-authors explore, in 2024, what mothers in Malawi live through when a child has hydrocephalus, a buildup of fluid in the brain. A major hospital in Blantyre treats about two hundred such children a year, and care lasts for life. Sixteen mothers joined deep interviews and group discussions.
Mothers moved between explaining the condition through God, bewitchment, and biomedicine. Care journeys were strenuous, with hard travel and repeated visits that disrupted daily life and income. The demands on caregivers were heavy and often invisible to the health system. The authors aim to make those burdens visible so services can respond better.
Catalog record
| CREATOR | Camilla G Aukrust, Patrick D Kamalo, Ebbelet Tembenu, Chimwemwe Mula, Heidi E Fjeld, Blessings A Chapweteka, Ruth Bvalani, Lucinda Manda-Taylor |
|---|---|
| YEAR | 2025 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 89 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |