Understanding Challenges of Recruiting African Americans for Genomic Studies in Alzheimer’s Disease Beyond Trust
Takiyah D Starks, Allison M Caban‐Holt, Kristy A Terrell, Jesseca Crawford, Ashley Gregory, Larry D Adams, Michael L Cuccaro, Jonathan L Haines, Christiane Reitz, Jeffery M Vance, Margaret A Pericak‐Vance, Goldie S Byrd · 2025
Read Understanding Challenges of Recruiting African Americans for Genomic Studies in Alzheimer’s Disease Beyond Trust by Takiyah D Starks, Allison M Caban‐Holt, Kristy A Terrell, Jesseca Crawford, Ashley Gregory, Larry D Adams, Michael L Cuccaro, Jonathan L Haines, Christiane Reitz, Jeffery M Vance, Margaret A Pericak‐Vance, Goldie S Byrd (2025) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-11715675.txt.
Description
Takiyah Starks and co-authors report what blocks Black adults in the United States from joining genomic studies of Alzheimer's disease, beyond the usual issue of trust. Four sites aim to enroll 4,000 African Americans over age 60, yet enrollment lags far behind first interest. The team traced each step from community outreach to a home visit over six months. Staff used up to eight calls and letters to hold each appointment.
Of 129 adults booked, 67 enrolled within the six months. About half booked on the first attempt, and the rest needed a second or third attempt. One in ten bookings fell through, most often because the person could not be reached. Fear of the blood draw, time strain, and lost interest each played a part. The team says trust alone will not close the gap. Many fixes at once are needed, plus work to learn why contact is lost.
Catalog record
| CREATOR | Takiyah D Starks, Allison M Caban‐Holt, Kristy A Terrell, Jesseca Crawford, Ashley Gregory, Larry D Adams, Michael L Cuccaro, Jonathan L Haines, Christiane Reitz, Jeffery M Vance, Margaret A Pericak‐Vance, Goldie S Byrd |
|---|---|
| YEAR | 2025 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 3 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |