Co‐creating practical social media recommendations for dementia prevention researchers: A Delphi study

Description

Viorica Hrincu, Katie T. Roy, and Julie M. Robillard built social media guidance for dementia prevention researchers, working with the public rather than for them. Social platforms can reach healthy people who do not know they qualify for prevention studies, but researchers lack practical rules that reflect public values. The team ran a three-round Delphi process with sixteen experts, ten with lived experience and six professionals. Agreement was set in advance at seventy percent.

Twenty-six recommendations reached agreement. Early rounds settled privacy points, such as the value of closed groups. Later rounds covered fighting false claims, challenging stigma, handling harsh comments, and choosing prevention language for different audiences. One item, on language for people living with dementia, never reached agreement. The final set is organized into seven use cases, from setting up a page to recruiting study participants.

Catalog record

Source: https://europepmc.org/articles/PMC11715096