Experiences of Participant Burden in an Alzheimer’s Disease Research Center Longitudinal Cohort
Theresa F Gierzynski, Jonathan M Reader, Bernardo Flores, Renee Gadwa, Arijit K Bhaumik, Annalise Rahman‐Filipiak, Judith L Heidebrink, Bruno Giordani, Benjamin M Hampstead, Kelly M Bakulski, Henry L Paulson, J Scott Roberts · 2025
Read Experiences of Participant Burden in an Alzheimer’s Disease Research Center Longitudinal Cohort by Theresa F Gierzynski, Jonathan M Reader, Bernardo Flores, Renee Gadwa, Arijit K Bhaumik, Annalise Rahman‐Filipiak, Judith L Heidebrink, Bruno Giordani, Benjamin M Hampstead, Kelly M Bakulski, Henry L Paulson, J Scott Roberts (2025) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-11713739.txt.
Description
Theresa Gierzynski and co-authors ask research volunteers how heavy their study duties feel in a 2025 paper. Long studies of aging and memory need people to stay for years. When visits feel like a burden, people quit, and the results skew. The team also asks whether minority volunteers feel that burden more than others.
The volunteers belong to a memory and aging study at a Michigan research center. They answered questions about time, travel, tests, and stress. The team compared answers across racial groups and study roles. Findings like these help centers cut needless hurdles. Keeping a broad mix of volunteers makes dementia research results hold true for more people.
Catalog record
| CREATOR | Theresa F Gierzynski, Jonathan M Reader, Bernardo Flores, Renee Gadwa, Arijit K Bhaumik, Annalise Rahman‐Filipiak, Judith L Heidebrink, Bruno Giordani, Benjamin M Hampstead, Kelly M Bakulski, Henry L Paulson, J Scott Roberts |
|---|---|
| YEAR | 2025 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 3 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |