Instruments to measure the roles, experiences, and identities of caregivers of individuals with Alzheimer’s disease and related dementias: A scoping review
Maritza Dowling, Erin Rook, Brittany Klenczar, Kari A Hancock, Max OHala, Cody Yamada, Stephanie Mendizabal, Joel G Anderson, Jason D Flatt · 2025
Read Instruments to measure the roles, experiences, and identities of caregivers of individuals with Alzheimer’s disease and related dementias: A scoping review by Maritza Dowling, Erin Rook, Brittany Klenczar, Kari A Hancock, Max OHala, Cody Yamada, Stephanie Mendizabal, Joel G Anderson, Jason D Flatt (2025) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-11713695.txt.
Description
Maritza Dowling and co-authors review the tools used to measure the lives of dementia caregivers in a 2025 scoping review. More people now live with Alzheimer's disease and related dementias, and unpaid family caregivers carry much of the daily work. Sound measures of caregiver roles, experiences, and identity are needed to design and judge support programs.
The team searched five databases for work from 1980 to 2023, keeping studies that built such measures and reported their quality. They describe each instrument and the groups used to validate it, noting how well the tools fit diverse caregiver populations. The review helps researchers pick measures that capture both the strain and the positive sides of caregiving, and it flags where better tools are still needed.
Catalog record
| CREATOR | Maritza Dowling, Erin Rook, Brittany Klenczar, Kari A Hancock, Max OHala, Cody Yamada, Stephanie Mendizabal, Joel G Anderson, Jason D Flatt |
|---|---|
| YEAR | 2025 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 3 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |