“I assume that my doctor will then guide me”: Attitudes and Expectations in the Context of Dementia Risk Estimation
Constanze Hübner, Annika Baumeister, Michelle Gerards, Yahveth Cantero‐Fortiz, Federica Ribaldi, Julia Braun, Mercè Boada, Giovanni B. Frisoni, Frank Jessen, Ayda Rostamzadeh, Carolin Schwegler, Björn Schmitz‐Luhn, Christiane Woopen · 2025
Read “I assume that my doctor will then guide me”: Attitudes and Expectations in the Context of Dementia Risk Estimation by Constanze Hübner, Annika Baumeister, Michelle Gerards, Yahveth Cantero‐Fortiz, Federica Ribaldi, Julia Braun, Mercè Boada, Giovanni B. Frisoni, Frank Jessen, Ayda Rostamzadeh, Carolin Schwegler, Björn Schmitz‐Luhn, Christiane Woopen (2025) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-11712816.txt.
Description
Constanze Hübner and co-authors explore attitudes and expectations around estimating a person's risk of Alzheimer's dementia, published in 2025. New non-invasive methods can estimate that risk even before symptoms, for instance in people who notice their own memory slipping. Telling someone their risk raises ethical issues touching identity and self-image.
As part of a larger project on the predictive turn in this disease, the team planned dozens of interviews. Participants were close relatives of patients and people with a recent or older diagnosis of subjective cognitive decline. The interviews probe what people expect from risk estimation and from their doctors afterward. One quoted line captures a common stance: the speaker assumes their doctor will guide them. Findings aim to inform careful clinical use of risk tools.
Catalog record
| CREATOR | Constanze Hübner, Annika Baumeister, Michelle Gerards, Yahveth Cantero‐Fortiz, Federica Ribaldi, Julia Braun, Mercè Boada, Giovanni B. Frisoni, Frank Jessen, Ayda Rostamzadeh, Carolin Schwegler, Björn Schmitz‐Luhn, Christiane Woopen |
|---|---|
| YEAR | 2025 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 3 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |