Brain disease Research Infrastructure for Data Gathering and Exploration (BRIDGE): A government‐led platform for standardized data collection, longitudinal monitoring, and sharing of Korean data sources for brain disorders

Junwoo Seo, Sujung Oh, Eunjee Kang, Danbee Kang · 2025

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Description

Junwoo Seo, Sujung Oh, Eunjee Kang, and Danbee Kang describe, in a 2025 paper, a national platform for brain disease data in Korea, named BRIDGE. Brain diseases are hard to study, and past registries had gaps: thin variable sets, no shared standards, weak links to outside data, and breaks in follow-up. The Korea National Institute of Health built the platform to fix those flaws. It uses one standard form for all data, tracks people over time, and shares data for research.

Four cohorts sit at its core, on early and late dementia, on people at high risk in the community, and on Parkinson's disease. The standard set spans home life, habits, past health, daily acts, mood, thought tests, sleep, and care partner load. The paper lays out the design for labs that plan like work.

Catalog record

CREATORJunwoo Seo, Sujung Oh, Eunjee Kang, Danbee Kang
YEAR2025
COLLECTIONPAPERS
FORMATTXT
FILE SIZE3 KB
VERSION1.0
LICENSECC BY 4.0
RIGHTSCC BY
SOURCEEurope PMC

Source: https://europepmc.org/articles/PMC11712798

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