Advancing Alzheimer’s disease and related dementias (ADRD) and COVID‐19 research by linking real‐world data with a standardized longitudinal ADRD data platform
Sarah A Biber, Maria G Prado, Jessica E Culhane, Jim Phuong, Ben Keller, Melissa Lerch, Sophia Wang, James M Noble, Krista L Moulder, Andrew J Saykin, Sujuan Gao, Albert Lai, Karthik Natarajan, Walter A Kukull, Sean Mooney, Kari Stephens · 2025
Read Advancing Alzheimer’s disease and related dementias (ADRD) and COVID‐19 research by linking real‐world data with a standardized longitudinal ADRD data platform by Sarah A Biber, Maria G Prado, Jessica E Culhane, Jim Phuong, Ben Keller, Melissa Lerch, Sophia Wang, James M Noble, Krista L Moulder, Andrew J Saykin, Sujuan Gao, Albert Lai, Karthik Natarajan, Walter A Kukull, Sean Mooney, Kari Stephens (2025) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-11712757.txt.
Description
Sarah A Biber and co-authors published a research paper in 2025 on joining health records with a shared data bank on Alzheimer's disease and related forms of dementia. People with these illnesses faced high risk from COVID-19, and the team wanted records that could show how the virus changed their memory and health over time.
The project linked clinic records, Medicare claims, and gene data with the standard test scores held by a national center. It also set shared consent forms and data rules so sites could pool their records in one safe space. A pilot across three centers aimed at more than a thousand healthy adults plus hundreds more with mild loss or dementia. The setup lets teams ask new questions at scale.
Catalog record
| CREATOR | Sarah A Biber, Maria G Prado, Jessica E Culhane, Jim Phuong, Ben Keller, Melissa Lerch, Sophia Wang, James M Noble, Krista L Moulder, Andrew J Saykin, Sujuan Gao, Albert Lai, Karthik Natarajan, Walter A Kukull, Sean Mooney, Kari Stephens |
|---|---|
| YEAR | 2025 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 3 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |