Perspectives from Underrepresented Patients and Families Following Biomarker‐Informed ADRD Diagnoses: Insights from the PARADE Study
Melissa L Knox, Megan G Witbracht, Joshua D Grill, Jennifer H Lingler · 2025
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Description
Melissa Knox, Megan Witbracht, Joshua Grill, and Jennifer Lingler report early work from the PARADE study in this 2025 paper. The study concerns how Alzheimer's disease and related dementias are now diagnosed. Biomarker tests can confirm the biology behind memory loss, but families from groups long left out of research may face the news with distinct needs.
The authors aim to learn how such families live through biomarker-based diagnosis. They want care that answers cultural needs and respects each family's context. Online focus groups, led by a trained facilitator over a secure video platform, form the core method. Participants are a chosen subsample of families already enrolled in PARADE. The talks trace the full path, from first concern to hearing the result. Lessons from these voices should shape fairer support after diagnosis.
Catalog record
| CREATOR | Melissa L Knox, Megan G Witbracht, Joshua D Grill, Jennifer H Lingler |
|---|---|
| YEAR | 2025 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 3 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |