I struggle watching her diminish: Caregivers experiences of caring for loved ones with Alzheimer’s
Lucy Wambui Kamau, Edna N Bosire, Karen Blackmon, Chi Udeh‐Momoh, Olivera Nesic‐Taylor, Dilraj Sokhi, Sylvia Mbugua, Vaibhav Narayan, Zul Merali · 2025
Read I struggle watching her diminish: Caregivers experiences of caring for loved ones with Alzheimer’s by Lucy Wambui Kamau, Edna N Bosire, Karen Blackmon, Chi Udeh‐Momoh, Olivera Nesic‐Taylor, Dilraj Sokhi, Sylvia Mbugua, Vaibhav Narayan, Zul Merali (2025) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-11712170.txt.
Description
Kamau and co-authors explore what it is like to care for a loved one with Alzheimer disease in Kenya, where such experiences are barely studied. The disease erases daily abilities, shifting the work onto family. Their 2025 study interviews thirty caregivers from a Nairobi hospital neurology clinic in depth, in English or Swahili, and codes the transcripts for themes.
Most caregivers lacked knowledge and skills for the role, and the burden spanned emotion, body, and money. Changing personalities and the fading of the patient's identity left many worn out and frustrated, and some reported mental health strain. Support in Kenya is thin. Yet caregivers also spoke of fulfillment and privilege. The authors call for training and psychosocial support from providers and other stakeholders.
Catalog record
| CREATOR | Lucy Wambui Kamau, Edna N Bosire, Karen Blackmon, Chi Udeh‐Momoh, Olivera Nesic‐Taylor, Dilraj Sokhi, Sylvia Mbugua, Vaibhav Narayan, Zul Merali |
|---|---|
| YEAR | 2025 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 3 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |