Navigating the Longitudinal Maze: Unravelling Challenges in the Follow‐up of a Dementia Cohort Study

Sunitha HS, Abhishek Mensegere Lingegodwa, Ajith Partha, Prathima Arvind, Divya NM, Amitha CM, Deva Kumar HS, Rajitha Narayanasamy, Meghana R, Meenakshi Menon, Vindhya Vishwanath, Goutham Velavarajan, Sadhana Singh, Palash K Malo, Albert Stezin, Jonas S Sundarakumar, Thomas Gregor Issac · 2025

Read Navigating the Longitudinal Maze: Unravelling Challenges in the Follow‐up of a Dementia Cohort Study by Sunitha HS, Abhishek Mensegere Lingegodwa, Ajith Partha, Prathima Arvind, Divya NM, Amitha CM, Deva Kumar HS, Rajitha Narayanasamy, Meghana R, Meenakshi Menon, Vindhya Vishwanath, Goutham Velavarajan, Sadhana Singh, Palash K Malo, Albert Stezin, Jonas S Sundarakumar, Thomas Gregor Issac (2025) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-11710227.txt.

Description

Sunitha and co-authors describe the struggle of keeping volunteers in a long-running dementia study in India, in a 2025 paper. The Tata Longitudinal Study of Ageing follows healthy community volunteers with yearly cognitive tests, blood work, and brain scans. Volunteers are recruited through talks, adverts, and word of mouth, and clinicians share each person's results to keep contact warm. Newsletters and yearly meets add to the tie.

Dropouts still came, and the team catalogued the reasons given when people were called back. A mobile unit visited homes of those who could not travel but wished to stay. The paper refines the follow-up protocol and offers the lessons to other cohort studies. Retention, the authors show, is a design problem, not luck.

Catalog record

CREATORSunitha HS, Abhishek Mensegere Lingegodwa, Ajith Partha, Prathima Arvind, Divya NM, Amitha CM, Deva Kumar HS, Rajitha Narayanasamy, Meghana R, Meenakshi Menon, Vindhya Vishwanath, Goutham Velavarajan, Sadhana Singh, Palash K Malo, Albert Stezin, Jonas S Sundarakumar, Thomas Gregor Issac
YEAR2025
COLLECTIONPAPERS
FORMATTXT
FILE SIZE3 KB
VERSION1.0
LICENSECC BY 4.0
RIGHTSCC BY
SOURCEEurope PMC

Source: https://europepmc.org/articles/PMC11710227

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