Mitigating Barriers to Participant Recruitment and Retention in the READD‐ ADSP Programme: Experience from the African Dementia Consortium
Rufus O Akinyemi · 2025
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Description
Rufus Akinyemi reports how an African dementia gene program beat barriers to signing up and keeping participants, in work from 2025. World dementia research needs far more varied pools of people. A global gene effort targets well over a hundred thousand people. Its varied arm aims for thousands across Africa, America, and Hispanic groups. Nine African countries host sites under one joint body.
Hundreds of cases and matched controls joined in the first seven months. Missing lists of patients and many languages slowed the sign-up work badly. Myths about giving blood and shame around dementia hurt too. Family views, hopes for payment, and fears for privacy added friction. Boards of local advisers and outreach in the community pushed back. Ties with doctors and posts on social media also drew people in. Outreach that fits the local setting is the lesson other world studies can take.
Catalog record
| CREATOR | Rufus O Akinyemi |
|---|---|
| YEAR | 2025 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 3 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |