FACES OF FORTITUDE: DIVERSE CAREGIVERS PROVIDING COMPLEX CARE

Heather Young, Janice Bell, Kathleen Kelly · 2024

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Description

Heather Young and co-authors gather five studies on the family members holding up America's long-term care. Over fifty-six million people give unpaid care to relatives, and California's Master Plan on Aging recently funded stronger local supports. The session focuses on groups whose care work is rarely studied.

Talks cover care alongside home services in ALS, and how caring in Parkinson's and Lewy body dementia compares with Alzheimer's and other illnesses. One study follows families building skill with nurses during acute illness. Another judges adult day services through the eyes of dementia caregivers. A statewide data paper closes with demands, unmet needs, and resource gaps, feeding an equity plan for California. The shared theme is grit under complex, unevenly backed work.

Catalog record

CREATORHeather Young, Janice Bell, Kathleen Kelly
YEAR2024
COLLECTIONPAPERS
FORMATTXT
FILE SIZE2 KB
VERSION1.0
LICENSECC BY 4.0
RIGHTSCC BY
SOURCEEurope PMC

Source: https://europepmc.org/articles/PMC11689081

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