Development and Usability of an Advance Care Planning Website (My Voice) to Empower Patients With Heart Failure and Their Caregivers: Mixed Methods Study
Chetna Malhotra, Alethea Yee, Chandrika Ramakrishnan, Sanam Naraindas Kaurani, Ivy Chua, Joshua R Lakin, David Sim, Iswaree Balakrishnan, Vera Goh Jin Ling, Huang Weiliang, Lee Fong Ling, Kathryn I Pollak · 2024
Read Development and Usability of an Advance Care Planning Website (My Voice) to Empower Patients With Heart Failure and Their Caregivers: Mixed Methods Study by Chetna Malhotra, Alethea Yee, Chandrika Ramakrishnan, Sanam Naraindas Kaurani, Ivy Chua, Joshua R Lakin, David Sim, Iswaree Balakrishnan, Vera Goh Jin Ling, Huang Weiliang, Lee Fong Ling, Kathryn I Pollak (2024) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-11669373.txt.
Description
Chetna Malhotra and co-authors build and test a website that helps heart failure patients plan future care, in a study from 2024. Advance care planning lets patients state their values and choices before they become too ill to speak. Web tools can help, but none had been designed for heart failure patients and their caregivers.
The site, called My Voice, has separate parts for patients and caregivers. It was built with an advisory board and tested in rounds. Thirty people took part: patients, caregivers, and health staff. They found the site easy to use, with clear content that helped talks about goals. Users liked that they could revisit their choices over time. Scores rated usability as good, and most patients and caregivers rated it highly.
Catalog record
| CREATOR | Chetna Malhotra, Alethea Yee, Chandrika Ramakrishnan, Sanam Naraindas Kaurani, Ivy Chua, Joshua R Lakin, David Sim, Iswaree Balakrishnan, Vera Goh Jin Ling, Huang Weiliang, Lee Fong Ling, Kathryn I Pollak |
|---|---|
| YEAR | 2024 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 47 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |