Prevalence and predictors of parental distress at the communication of positivity at newborn screening for metabolic diseases: an Italian longitudinal study
Marco Bani, Selena Russo, Serena Gasperini, Viola Crescitelli, Francesca Menni, Francesca Furlan, Francesco Tagliaferri, Graziella Cefalo, Sabrina Paci, Giuseppe Banderali, Paola Marchisio, Andrea Biondi, Maria Grazia Strepparava · 2024
Read Prevalence and predictors of parental distress at the communication of positivity at newborn screening for metabolic diseases: an Italian longitudinal study by Marco Bani, Selena Russo, Serena Gasperini, Viola Crescitelli, Francesca Menni, Francesca Furlan, Francesco Tagliaferri, Graziella Cefalo, Sabrina Paci, Giuseppe Banderali, Paola Marchisio, Andrea Biondi, Maria Grazia Strepparava (2024) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-11667425.txt.
Description
Marco Bani and co-authors report a 2024 Italian study on the distress parents feel when newborn screening flags a possible metabolic disease. A positive first result can shake parents whether it later proves false or true. The team followed 169 fathers and 171 mothers who were called to a metabolic center, surveying them at the first visit and again after one, three, and six months.
Nearly eighty percent of parents showed clinical levels of distress and anxiety right after the news. About a third showed signs of post-traumatic stress, and more than half said they needed help. Six months on, more than thirty percent still showed high distress, and over a fifth still asked for help. Mothers and fathers fared much the same. The authors argue that how the news is delivered, and what support follows, needs far more care.
Catalog record
| CREATOR | Marco Bani, Selena Russo, Serena Gasperini, Viola Crescitelli, Francesca Menni, Francesca Furlan, Francesco Tagliaferri, Graziella Cefalo, Sabrina Paci, Giuseppe Banderali, Paola Marchisio, Andrea Biondi, Maria Grazia Strepparava |
|---|---|
| YEAR | 2024 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 37 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |