Accountability for Reasonableness as a Framework for the Promotion of Fair and Equitable Research
Charles Dupras, Marie‐Pierre Dubé, Simon Gravel, Hazar Haidar · 2024
Read Accountability for Reasonableness as a Framework for the Promotion of Fair and Equitable Research by Charles Dupras, Marie‐Pierre Dubé, Simon Gravel, Hazar Haidar (2024) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-11662771.txt.
Description
Charles Dupras, Marie-Pierre Dube, Simon Gravel, and Hazar Haidar propose an ethics framework for fairer genomic research, in a 2024 paper. Minority groups are still often excluded from genomic datasets and publications, which skews who benefits. The authors adapt a framework first built for health policy decisions.
Accountability for reasonableness rests on public reasoning, relevant grounds, enforcement, and chances to revise. The authors argue the same tests should govern data selection choices in research. Funders, ethics boards, and journals could push researchers to justify exclusions openly. They suggest the approach also fits artificial intelligence work, where bias and uneven benefit sharing are growing concerns.
Catalog record
| CREATOR | Charles Dupras, Marie‐Pierre Dubé, Simon Gravel, Hazar Haidar |
|---|---|
| YEAR | 2024 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 32 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |