“Are we genuinely going to have our voices heard?” The experience of co-producing a blended intervention to prevent relapse in obsessive-compulsive disorder: a qualitative study on the perspectives of experts by lived experience
Josie FA Millar, Nina Higson-Sweeney, Tom A Jenkins, Erin F Waites, Sophie Minns · 2024
Read “Are we genuinely going to have our voices heard?” The experience of co-producing a blended intervention to prevent relapse in obsessive-compulsive disorder: a qualitative study on the perspectives of experts by lived experience by Josie FA Millar, Nina Higson-Sweeney, Tom A Jenkins, Erin F Waites, Sophie Minns (2024) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-11654374.txt.
Description
Josie Millar and four colleagues ask people with obsessive-compulsive disorder how it felt to co-produce their own treatment research, in a study published in two thousand twenty-four. Co-production promises shared power between researchers and experts by lived experience. Its benefits are often asserted, rarely examined from the lived-experience side.
Five such experts were interviewed about building a blended intervention to prevent OCD relapse. Reflexive thematic analysis produced four themes. The title quotes the central anxiety: were their voices genuinely going to be heard? Findings explore where collaboration felt real and where it felt tokenistic. The study offers rare ground-level evidence for improving patient involvement in mental health intervention design.
Catalog record
| CREATOR | Josie FA Millar, Nina Higson-Sweeney, Tom A Jenkins, Erin F Waites, Sophie Minns |
|---|---|
| YEAR | 2024 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 62 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |