Consensus on transition care for juvenile idiopathic arthritis: a Delphi study with youth, caregivers, and health professionals
Nihal Şahin, Gülcan Özomay Baykal, Ceyhun Açarı, Pinar Özge Avar Aydın, Özge Baba, Esra Bağlan, Sevcan Bakkaloğlu, Sibel Bakırcı, Yelda Bilginer, Burcu Yücel Bozkaya, Şengül Çağlayan, Mustafa Çakan, Figen Çakmak, Taner Coşkuner, Ferhat Demir, Fatma Gül Demirkan, Şeyda Doğantan, Hatice Adıgüzel Dünda · 2024
Read Consensus on transition care for juvenile idiopathic arthritis: a Delphi study with youth, caregivers, and health professionals by Nihal Şahin, Gülcan Özomay Baykal, Ceyhun Açarı, Pinar Özge Avar Aydın, Özge Baba, Esra Bağlan, Sevcan Bakkaloğlu, Sibel Bakırcı, Yelda Bilginer, Burcu Yücel Bozkaya, Şengül Çağlayan, Mustafa Çakan, Figen Çakmak, Taner Coşkuner, Ferhat Demir, Fatma Gül Demirkan, Şeyda Doğantan, Hatice Adıgüzel Dünda (2024) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-11654283.txt.
Description
Nihal Şahin and co-authors built expert consensus on how young people with juvenile arthritis should move from child to adult care, in a 2024 Delphi study. The shift is hard to run in practice, and each country needs a program that fits its own system. Youth, caregivers, and health professionals all took part in shaping the guidance.
Three panels of patients, parents, and clinicians rated key statements over two rounds. Of 102 people contacted, most joined the process, and statements that won wide backing formed the core of the plan. The result is a shared list of what good transition care should include, ready to adapt into a national program.
Catalog record
| CREATOR | Nihal Şahin, Gülcan Özomay Baykal, Ceyhun Açarı, Pinar Özge Avar Aydın, Özge Baba, Esra Bağlan, Sevcan Bakkaloğlu, Sibel Bakırcı, Yelda Bilginer, Burcu Yücel Bozkaya, Şengül Çağlayan, Mustafa Çakan, Figen Çakmak, Taner Coşkuner, Ferhat Demir, Fatma Gül Demirkan, Şeyda Doğantan, Hatice Adıgüzel Dünda |
|---|---|
| YEAR | 2024 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 44 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |