Characterizing Patient Perceptions of Living with Geographic Atrophy: The Global Geographic Atrophy Insights Survey
Sophie J Bakri, Christian K Brinkmann, Amy Mulvey, Kathy Steinberg, Roz Katz, Pooja Vatsyayan, Sujata P Sarda, Nancy M Holekamp · 2024
Read Characterizing Patient Perceptions of Living with Geographic Atrophy: The Global Geographic Atrophy Insights Survey by Sophie J Bakri, Christian K Brinkmann, Amy Mulvey, Kathy Steinberg, Roz Katz, Pooja Vatsyayan, Sujata P Sarda, Nancy M Holekamp (2024) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-11651066.txt.
Description
An advanced eye illness eats sight in patches and cannot be undone, and Sophie Bakri and co-authors surveyed people who live with it, in work from twenty twenty-four. The survey spanned North America, Australia, and six European lands in late twenty twenty-one. Two hundred three adults, mean age seventy, told how the illness shapes their days.
Most said sight loss came faster than they had braced for, and most said full joy in life is now hard. Driving, reading, and travel all took heavy hits, much the same for one-eye and two-eye cases. False beliefs about the illness were common, and many wanted more teaching. The survey gives clinics a patient-side map of what care must answer.
Catalog record
| CREATOR | Sophie J Bakri, Christian K Brinkmann, Amy Mulvey, Kathy Steinberg, Roz Katz, Pooja Vatsyayan, Sujata P Sarda, Nancy M Holekamp |
|---|---|
| YEAR | 2024 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 45 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |