Translation, adaptation, and psychometric evaluation of the Quality of Life in a Child’s Chronic Disease Questionnaire for the Swedish context
Karin Blomberg, Małgorzata Farnik, Mats Eriksson · 2024
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Description
Blomberg, Farnik, and Eriksson translated and tested a family quality-of-life questionnaire for Swedish use. The survey asks parents how a child's long-term illness affects family life, an impact few tools measure. Parents of children with asthma or type 1 diabetes were invited; 173 of 627 answered.
Statistical checks reshaped the Swedish version. Instead of the original five themes, answers grouped into two: family life and activities, with eight questions, and emotions and symptoms, with four. Three questions on anxiety, worry, and guilt loaded too weakly and were dropped. The two themes explained about seventy-four percent of the answer variation, and scores held together well. The authors judge the Swedish version sound and suggest it for spotting families who most need support, pending further checks.
Catalog record
| CREATOR | Karin Blomberg, Małgorzata Farnik, Mats Eriksson |
|---|---|
| YEAR | 2024 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 30 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |