Who has the responsibility to inform relatives at risk of hereditary cancer? A population-based survey in Sweden
Kalle Grill, Amicia Phillips, Barbro Numan Hellquist, Anna Rosén · 2024
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Description
Who must warn relatives about an inherited cancer risk? A 2024 Swedish survey by Kalle Grill and co-authors asks the public. Patients are usually expected to tell their kin, with clinicians helping, but the division of duty is murky when families are estranged.
Respondents faced a scenario: a patient learns of a colorectal cancer risk and is told to get regular colonoscopies, advice meant for siblings and cousins too. The patient tells siblings but has not spoken to cousins in twenty years and refuses to contact them. About half of eighteen hundred invited citizens answered. Their views on the patient's and clinicians' ethical and legal duties to reach the cousins were recorded. The results map public expectations where law and practice have left a gap.
Catalog record
| CREATOR | Kalle Grill, Amicia Phillips, Barbro Numan Hellquist, Anna Rosén |
|---|---|
| YEAR | 2024 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 31 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |