The BRAIN Initiative data-sharing ecosystem: Characteristics, challenges, benefits, and opportunities

Sudhanvan Iyer, Kathryn Maxson Jones, Jill O Robinson, Nicole R Provenza, Dominique Duncan, Gabriel Lázaro-Muñoz, Amy L McGuire, Sameer A Sheth, Mary A Majumder · 2024

Read The BRAIN Initiative data-sharing ecosystem: Characteristics, challenges, benefits, and opportunities by Sudhanvan Iyer, Kathryn Maxson Jones, Jill O Robinson, Nicole R Provenza, Dominique Duncan, Gabriel Lázaro-Muñoz, Amy L McGuire, Sameer A Sheth, Mary A Majumder (2024) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-11602185.txt.

Description

Sudhanvan Iyer and eight colleagues map the data-sharing system of the United States BRAIN Initiative, in a twenty twenty-four paper. The program funds seven data archives that store brain research for reuse. The team compared how each archive takes in data, grants access, and links with the others. They also interviewed thirty-four people involved in the system.

Sharing human data raises consent and stewardship problems, since permission forms differ across archives. A spread of archives lets each serve its own research community well. The authors frame the network as raw material that can evolve with scientists' needs. Their guide aims to help readers share and reuse brain data with more ease.

Catalog record

CREATORSudhanvan Iyer, Kathryn Maxson Jones, Jill O Robinson, Nicole R Provenza, Dominique Duncan, Gabriel Lázaro-Muñoz, Amy L McGuire, Sameer A Sheth, Mary A Majumder
YEAR2024
COLLECTIONPAPERS
FORMATTXT
FILE SIZE69 KB
VERSION1.0
LICENSECC BY 4.0
RIGHTSCC BY
SOURCEEurope PMC

Source: https://europepmc.org/articles/PMC11602185

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