Quality of Care in Pediatric Palliative Care: A Scoping Review
Tania Ruiz-Gil, Francisco Ródenas-Rigla, Julia Wager, Holger Hauch · 2023
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Description
Tania Ruiz-Gil and co-authors review what quality means in children's palliative care in a 2023 paper. Palliative care improves life for patients and families facing life-threatening illness, but adult frameworks do not transfer cleanly to children. Spain, the review's focus, needs its own quality indicators.
Following standard scoping methods, the team searched six databases for studies from 2000 to 2023 and kept thirty-five. The variables they found grouped into three areas: how care is structured and delivered, the psychological side of care, and care at the end of life. Recurring improvement levers included better professional training in talking with children and families, private spaces with flexible visiting, stronger emotional support, and honest conversations about illness and dying. The authors argue quality in this field is as much relational as clinical. Their variable map gives Spanish services a checklist to measure themselves against.
Catalog record
| CREATOR | Tania Ruiz-Gil, Francisco Ródenas-Rigla, Julia Wager, Holger Hauch |
|---|---|
| YEAR | 2023 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 44 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |