BUILDING LONG-TERM HIV SURVIVOR RESEARCH CHAMPIONS FOR PERSON-CENTERED CARE VIA COMMUNITY DISSEMINATION
Margaret Danilovich, Andy Rapoport, Meredith Nicholson · 2023
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Description
Margaret Danilovich, Andy Rapoport, and Meredith Nicholson describe SHARE, a national advisory board that turns long term HIV survivors into research champions. Published in 2023, the paper starts from a shift: HIV is now a chronic condition, and survivors face aging with the virus. Their voices, the team argues, belong inside the research that shapes their care.
Board members trained in research methods, then ran a community needs assessment to set priorities on HIV and aging. Each member then carried findings home through talks, webinars, infographics, podcasts, and photo projects. The speakers present the model as a route to person centered care, where dissemination is done by the community, not just to it.
Catalog record
| CREATOR | Margaret Danilovich, Andy Rapoport, Meredith Nicholson |
|---|---|
| YEAR | 2023 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 2 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |