CHALLENGES OF E-INTERVENTION RESEARCH: LESSONS FROM THE ISUPPORT FOR DEMENTIA-PT FEASIBILITY STUDIES
Soraia Teles, Constança Paúl · 2023
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Description
Soraia Teles and Constança Paúl draw lessons from feasibility studies of an online support program for dementia caregivers in Portugal. Their 2023 poster reports on a program adapted from a World Health Organization original. Online interventions promise wider access, yet they bring their own research headaches.
Caregivers and professionals joined focus groups and usability sessions, and a small pilot compared the program with an e-book. Ethical challenges included privacy, the reliability of online consent, fair access, and digital literacy. Method choices also strained: defining fair per-protocol analysis for a self-help tool, timing follow-ups, and handling dropout when outcomes are measured online. The authors offer the experience as a caution map for digital health trials.
Catalog record
| CREATOR | Soraia Teles, Constança Paúl |
|---|---|
| YEAR | 2023 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 2 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |