BLACK CAREGIVERS’ CULTURAL, RELIGIOUS, AND SYMPTOM MANAGEMENT EXPERIENCES WITH HOME HOSPICE CARE
Taeyoung Park, Danetta Sloan, Dulce Maria Cruz-Oliver, M Cary Reid, Sara Czaja, Ronald Adelman, Ritchell Dignam, Veerawat Phongtankuel · 2023
Read BLACK CAREGIVERS’ CULTURAL, RELIGIOUS, AND SYMPTOM MANAGEMENT EXPERIENCES WITH HOME HOSPICE CARE by Taeyoung Park, Danetta Sloan, Dulce Maria Cruz-Oliver, M Cary Reid, Sara Czaja, Ronald Adelman, Ritchell Dignam, Veerawat Phongtankuel (2023) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-10737491.txt.
Description
Taeyoung Park and co-workers interview Black caregivers of home hospice patients, in a 2023 study. Black caregivers carry heavy loads and face unmet needs, yet little research covers their experience after hospice enrollment. The team explored cultural, religious, and symptom management challenges through in-depth interviews.
Eleven bereaved caregivers shared their accounts. Cultural needs such as familiar food and language were not top concerns for most. Many worried that stigma around mental health kept patients from seeking help. Most leaned on their own church networks rather than hospice chaplains. Pain, appetite loss, and decline near death were hardest to manage, though overall satisfaction was high.
Catalog record
| CREATOR | Taeyoung Park, Danetta Sloan, Dulce Maria Cruz-Oliver, M Cary Reid, Sara Czaja, Ronald Adelman, Ritchell Dignam, Veerawat Phongtankuel |
|---|---|
| YEAR | 2023 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 2 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |