UNVEILING THE COMPLEX REALITIES: UNDERSTANDING SLEEP AND FATIGUE CHARACTERISTICS OF END-OF-LIFE CAREGIVERS
Hyeyoung Park, Sunghoon Lee, Amelia Bailey, Yunda Liu, Cynthia Jacelon · 2023
Read UNVEILING THE COMPLEX REALITIES: UNDERSTANDING SLEEP AND FATIGUE CHARACTERISTICS OF END-OF-LIFE CAREGIVERS by Hyeyoung Park, Sunghoon Lee, Amelia Bailey, Yunda Liu, Cynthia Jacelon (2023) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-10737324.txt.
Description
Hyeyoung Park and co-authors study the sleep of people who care for dying loved ones at home. Their 2023 mixed-methods work follows five caregiving cases, for advanced and chronic illness, mixing surveys, a month of personal sleep monitoring, two weeks of sleep journals, and interviews.
On standard scales the caregivers scored 6.1 for sleep quality, a poor range, while devices recorded about 7.4 hours of sleep a night. They woke roughly twenty times across the month, and average fatigue sat high. Device readings looked alike across caregivers, yet self-ratings spread from fairly bad to very good. Interviews surfaced themes of vigilance, self-reliance, emotional labor, and being the linchpin, all under one heading: not having control. A patient's day, good or bad, set the caregiver's night, which the authors say makes support hard to standardize.
Catalog record
| CREATOR | Hyeyoung Park, Sunghoon Lee, Amelia Bailey, Yunda Liu, Cynthia Jacelon |
|---|---|
| YEAR | 2023 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 2 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |