LEADING ADVANCE CARE CONVERSATIONS: DEVELOPMENT OF AN INTERVENTION PLATFORM
Kara Dassel, Nancy Aruscavage, Emily Nachtweih, Katherine Supiano, Rebecca Utz, Eli Iacob, Jordana Clayton · 2023
Read LEADING ADVANCE CARE CONVERSATIONS: DEVELOPMENT OF AN INTERVENTION PLATFORM by Kara Dassel, Nancy Aruscavage, Emily Nachtweih, Katherine Supiano, Rebecca Utz, Eli Iacob, Jordana Clayton (2023) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-10735647.txt.
Description
Dassel and six co-authors describe building a web platform that helps people with dementia and their care partners plan future care. Their LEAD Guide walks families through values, preferences, and end-of-life wishes as thinking changes. The team turned the paper guide into an interactive online program.
Sixty community pairs took part in a pilot, working through planning talks and documents with built-in lessons. A community advisory board, including dementia experts and affected families, shaped the design through surveys and focus groups. They asked for simpler navigation, more personal messages, and easier feedback forms. The authors say end-user input at every step makes such tools workable.
Catalog record
| CREATOR | Kara Dassel, Nancy Aruscavage, Emily Nachtweih, Katherine Supiano, Rebecca Utz, Eli Iacob, Jordana Clayton |
|---|---|
| YEAR | 2023 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 2 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |